Sunday, October 12, 2014

Almost ONE, here we come!

Holy cow time does fly by! I can't believe my little man will be one in a week! ONE! How is this possible? It seems like just last week we were off and running to the hospital because I was in labor. It seems like just yesterday I was holding him for the first time, hearing him cry and needing to be loved and cuddled. Now my little man is off and running! He started walking a few weeks ago and doesn't ever seem to have time to stop moving. As I read back over that it seems about though he is walking consistently but he's not, just a fast crawler and a soon to be runner ;) 

He is progressing like every child around his age too. He can pick things up with no problems, he can walk like I said and nothing stops him. I'm so proud to see him accomplish so much at such a young age! I knew to never put limits on him, simply saying that he wouldn't be able to do something but in the back of my mind I did think that it would take some extra time. I honestly thought that he would be a late walker considering he is missing all toes on one of his feet. He proved me wrong to say the least! I also thought that grabbing toys or something small like a Cheerio would take some extra time as well, yet he has been doing that for months now! I can't wait to see what else he proves me wrong with ;)

Surgery update:

I think I had said in the past that he would hopefully have his hand surgeries when he turned one and we are still hoping for that! We had an appointment at Shriners for the surgeon to take a look and see when it would be possible to start the surgeries and they said they are hoping to get us in on October 23! I had been praying it would be after his first birthday so he wouldn't have a cast and I think that's what will happen! We are still waiting to get the confirmation call but I think that will come this week as well as a pre-op appointment and then surgery will be a week from Thursday! 

Now... I'm going to try and explain what they will do to his hands so hopefully you can follow along :)

They will start with his left hand. See the picture below so you can understand easier what they will do. 


First, there are bands around his pointer and pinkie finger. They will go in and release the bands, this way when he grows, they bands wont grow. Meaning. As he grows and gets older, if the bands are not released they could eventually amputate his finger from the band up. So they will go in and cut the band and create a "Z" stitch which basically looks like Charlie Browns sweater or, a Z :) Next they will go and separate the ring finger and middle finger. There is more than enough skin for them to accomplish this with no problem. After that they will release the band that is wrapped around his middle finger and try to make it less of a bulb. There's a term for it that I can't remember, but his middle finger will always have the bulb as it is part of ABS. But, they will try and make it less so it is easier for him to function. That will all happen within on surgery and then he will be in a full cast called a club cast. This means that the cast will completely cover his hand and fingers and go all the way up to his shoulder. He will be in the cast for roughly 4 weeks while everything heals up. 

Next one



Now to me, I always thought this hand would only need one surgery and if anything his left hand would need more than one but I was wrong. Goes to show how much I actually know! Ha. So his right hand will need to separate surgeries unfortunately. The reason being is that they can only operate on one side of the finger each time so if the hand needs fixing on both sides of the finger it must be separate surgeries. So this one they will separate the pinkie and ring finger, hoping to keep the pinkie tip but there are no guarantees that they can do that depending on how the tip gets the blood flow. He will then be in the same type of cast, they club cast for roughly 4 weeks as well and then go back in, once it is 100% healed for the next step which is just making a cut between his ring finger and middle finger. It is more webbed than we thought and so they will make it less webbed so he can use his fingers better. He will be in the same cast for the same amount of time. 


To say we have a long road ahead is an understatement but we are ready. Having his first surgery on his foot back in the summer really helped prepare me for what is to come. These surgeries will be around 2-2.5 hours so it is much longer than his foot but I think we are ready. Personally, I am ready because I want to see how he grows and functions when his fingers are separated and he can use them better. I'm nervous and excited all at the same time. I know he will be amazing and pull through like a champ :)  


Now for some cute pictures over the past few weeks :) 


We took a shopping trip with some friends down to Ikea. Well we had to get quite a few big items and we had 2 kids, 1 stroller and this flat cart. Jude is a little older and so we put him on the cart like this and wheeled him around Ikea. He loved it! 


We went on a bike ride and I happened to grab his rain coat incase it started to rain... Needless to say it did and we got wet. At least I got a cute picture out of it! 


This is one of my favorite pictures. This is our friend Justin sitting with Jude showing him how to throw a basketball and roll a soccer ball. It was captured perfectly! 




Have A Blessed Day :)

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